Author: Melissa

Tada!

Melissa

On Monday Duhdee reported at dinner that Monkey’s teacher had needed to use a “very firm voice” with Monkey that day. Uh oh.

The “firm voice” is a big deal. It, the promise of a time out and, on very rare occasions, an actual time out are the only disciplinary measures we’ve ever needed with Monkey. They’ve only ever used the “firm voice” at school. Each time we get a report, it’s that rare.

Duhdee told me that Monkey had gotten a mouthful of water from the water fountain and then SPIT IT on the floor! Fortunately, Monkey was staring at his plate and didn’t catch my struggle not to laugh. WHY would I be tempted to laugh?

We watched this on Sunday…this scene in particular…twice.

All I wanted to know was, did he say “Tada!” too? ((Of course we did NOT laugh and we did talk very seriously about the fact that we do not spit water at school.))

Have you heard of the Logo Reading System?

Melissa

We’ve had the pleasure of attending several Fragile X related conferences over the years and the Logo Reading System developed by Marcia Braden has been mentioned more than once. I’ve looked at it but we’ve never gone any further than that, Monkey was still pretty young. Now, however, I’m thinking we should ask the school to consider it. Why the change of heart?

Monkey has demonstrated before he recognizes logos. Dunkin Donuts for instance, but really, that’s not a shocker…we are frequent fliers at Dunkins! But over the last two weeks we’ve been hearing more and more from him. He’s “reading” logos. Yesterday alone we heard Geico, Bank of America, Fox, CBS and Sprint…also a bunch of numbers. Seven! One! Nine!

Anyone want to guess where we saw all these? Hmmm, this last one will tip you off. NFL.

LMAO, who said football wasn’t educational?

If only T K was this easy.

Melissa

We are not fans of Mondays here at Chez Monkey. I was in super-duper, extra slow-motion because I was up until 2 AMchatting with some WICKED awesome friends, two of whom seem to live in this place called C-A-N-A-D-A. Neat, eh? ((Don’t be jealous, they’re teaching me to speak Canadian.)) And, yes, even the morning after I can say it was sooooo worth it! I highly encourage other moms raising kids with FX to set up Skype dates with other moms. It is a great, FREE way to connect with other parents when you might be isolated either by distance or some other circumstance. You can even set up group chats.  It’s tons of fun. Do it!

Monkey was in super-duper, extra slow-motion because…that’s what he does when he doesn’t want to go to school. Which is daily so not really that big of a deal because we build time into our morning to accomdate that ((Please don’t tell him that or he’ll find some new way to derail the school plans!!!)) but on days when I’m running slow too, suddenly all that built in time disappears…and then some. I wish I knew how that happens because it sucks!

Anywho, we were both moving slower than molassess ((Much, much slower than molassess in January for sure.)) which ratchets up the stress in the household. Perfect for a Monday, eh ((SEE, I’m practically Canadian already!))?

When it came time for putting on shoes and jackets he was starting to get worked up. The faster we move the more upset he gets, sound familiar? I finally have everything ready. His hat and gloves packed because it’s 51 degrees here this morning but it will cool off later, his Vantage Lite, his BEE folder, his jackets…let’s go, let’s go, let’s go.

Then he stopped moving. “Money, skart?”

“What? We have to get going bud, let’s go.”

“Monneeyyyy, SKART?”

“Uh?” (thinking WTF is a damn skart??)

“Money, skart? Wrap up?”

Ohhhhhhhhhhhh! “OK, Monkey, I’ll put your scarFFF on. Ready?”

And, he was. So, fine, it is 51 degrees out but check out them mad vocab skillz!

Not a single guess?

Melissa

No one wants to translate “T K” for me, eh? Dang it.

We took Monkey to Edaville yesterday. He was really excited about the trip, there was a TRAIN involved, after all, but we nearly had a massive failure. The problem started when Umma was in the truck, playing with her phone and got a notice about a yard sale at Fenway Park. Yard Sale. Fenway Park.

So, we took a quick turn off Storrow and made an unscheduled stop. We know better but did you catch that bit about a yard sale at FENWAY PARK?? Sometimes you just have to go with the flow…that is an important life lesson to practice, right? Plus FENWAY FREAKING PARK, people! Totally justified. Monkey, though, completely unimpressed. In fact, if he knew the word he would have said he was p*ssed. Totally and utterly, even.

After that fun little stop ((And I, at least, DID have fun. I have a very slight obsession with Fenway.)), we drove over an hour to get to Edaville. Monkey was able to pull it together during that time and I think it would have gone pretty smoothly if not for the 30 minutes it took us to drive the last 1/2 mile. Unreal.

We sat quietly in the car enjoying a view of the lights while Duhdee bought the tickets and I really thought the worst of it was over. Haha! Silly, silly me. When I tried to get him out of the truck he crawled to the far side of the truck and yelled “No, stay here!” I don’t think so, little man! I managed to drag him out of the car and get him heading towards Duhdee. Then the train went by and blew it’s horn. ZOMG! After peeling him out of my butt we joined Duhdee at the park entrance. I literally had to carry him into the park. Once inside I had to physically keep him there.

Monkey and I stepped off away from everyone else and had a heart to heart talk during which I used the words “You listen to me” and “You had better.” Totally stellar parenting. Then I STFU and walked away. I was done reasoning with him, I knew he’d follow and I knew he’d calm down once I stopped talking to him. I have learned a thing or two about hyperarousal, it’s remembering it in the heat of the moment I suck at.

So, I walked around in a quiet area and studied the lights with Monkey hot on my heels. By the time we had made it to the bench where Duhdee was sitting Monkey was calm and ready to go on the train. We were going to let Duhdee wait in line and then join him at the end but Monkey wanted to stick together so…we stood in line…for over 20 minutes. *Twitch* We just missed the cut off for the 2nd train but it turned out to be a good thing because Monkey started shuffling his feet and grabbing his pants. When asked if he had to pee he kept saying “No! On train?”

Umma drew the short straw and took him to the bathroom. This was just plain stupid because everyone knows the line for the Ladies’ room is always 10 times the line for the Mens’! When we got to the end of the very, very long line Monkey started telling me “Pee? Money, pee!” Cwap. Several people looked at us apologetically but no one was going to let us cut. Then a man came out of the men’s room and cracked wise about there being no line for that bathroom, heh, heh, heh. 2 minutes later we exited the men’s room, done with our business, just as he finished scraping his jaw off the floor. There were 4 other women in there when we left.

After we got back in line for the train we had just a short wait left. Monkey was totally relaxed at this point and excited about having a turn on the train. The trains get quite packed and Monkey tried to cadge a little extra space by putting his feet on the bench, lol. We got him turned around and he didn’t much move for the entire trip. He was transfixed by the lights and the train ride. The only complaint we heard was that there was no tunnel but it is a cranberry bog so I think that’s to be expected, lol.

After the ride, Monkey announced he was ready for some pizza so we headed home. About 10 minutes from the house, he fell asleep. It’s a good thing he was so tired or I would have woken him up when I turned around and saw this…

Don’t judge, you would have laughed too.

What is he saying?

Melissa

This has been a consistent game in our lives for the last two or three years. Even as his speech gets clearer and clearer there are still times when we just have NO idea what he is trying to say. It seems like every time I ask you to play along something clicks and we figure it out. I am counting on you to work your magic once again because this one has been going on for weeks now and it’s driving me bat-shiznit crazy and I’m really trying to cut back on my crazy these days. So.

Every weekday morning, on our drive to school, we drive through Inman Square ((Go ahead and Google Map that because it’s one nutty intersection.)). As we approach the intersection Monkey calls out “T K!”

What. The. Fudge?

He has, lately, begun to use it at a few other intersections now too but it clearly has something to do with the traffic lights. We’re stumped so let’s see you work your magic my peeps.

Now they are in for it.

Melissa

Yesterday, during free play time, Monkey made a major discovery. He is tall. Tall enough to open the latches on the supply closets in his classroom where the teacher just happens to store all sorts of really cool craft supplies and snacks…

This might not not have been a huge deal if his teacher had noticed first and redirected him but noooooo…his classmates were the ones to notice this new development and they quickly decided to exploit it for all it was worth. “Hey! Monkey, get me the ____!” And Monkey, obediently got the _____. “Monkey, can I have the _____?” Yep, sure looks that way!

The teacher allowed the game (also referred to as “controlled” chaos) to continue because she didn’t want to break up the social interaction. SUCKER! There is NO way Monkey or the other kids are just going to forget about this. Here’s hoping she spent last night practicing her “firm” voice or she may discover she’s lost control of her classroom.

This may help!

Melissa

Duhdee, the genius that he is, just gave me a swift kick to my technologically challenged patootie. iPhone, meet the WordPress app! Now I can blog during the only consistent downtime I have…no, not the toilet, my commute!

Though, the T does have a tendency to smell like a toilet with an alarming frequency, I shall try to spare you all those details. That is what facebook status updates are for!

A True Cuteness Dump, I promise.

Melissa
  • On Sunday, Duhdee woke up early and went to Toys R Us to buy a gift for Monkey that went on sale that morning. As he was leaving, in the dark, he asked “Would you like me to bring home Dunkins?” Which, really? Duh! That’s like asking me, “Hey, honey, would you like to breath today?” Anway. I said yes and put in my order ((Would you believe that I’ve become so used to him placing orders for me at Dunkins that when I attempted to do it myself last Thursday I screwed it up? He was standing next to me prompting me “Do you want it toasted?” “Yes, toasted please!” “Do you want milk & sugar in your tea?” “Yes! Milk and sugar, please!” PATHETICAL!)). When Duhdee got home Monkey was in his room and I told him that Daddy was home. Monkey came running out of his room yelling “Hi Daddy! Hewwo! Hi! Hi!” but as soon as he saw the Dunkin Donuts bag and drink caddy in Duhdee’s hands he immediately switched to “Honey! Dunkins! Hurray! Yay! Dunkins!”
  • Five minutes later, Duhdee had put the goods on the counter in the kitchen and we were scheming how to keep the kid occupied while Duhdee went to move the presents. Normally, Monkey will go stand at the window to watch us when we go outside. Monkey came up with his own idea however. He strolled by us, casually, holding his opened cup of Dunkins hot chocolate. He looked at us briefly and said “Mmmm, good!” before proceeding to his laptop to browse YouTube clips. Problem solved. Everyone loves a cuppa Dunkins with their morning internet apparently.
  • Hours later, while we were shopping, Monkey was a little upset about going out. He had been arguing for a day in…he always wants to stay in when Umma is involved…but Umma had stuff to do and they tagged along. He settled down after a little while and at our 2nd stop of the day I was buying some…stuff…and Monkey really just wanted a hug. Actually, he really wanted me to pick him up, squeeze him, kiss his cheeks and pretend to bite his ears and, so, I did. His mood was greatly improved and I thought I could finish my shopping. But Monkey hadn’t had enough! He can never get enough hugs and kisses, which is one of many, many reasons I love him to bits. But I wanted to hurry before this good mood of his passed, it happens.  I started power walking through the aisles and he…chased me. So I ran around and misbehaved in the worst way with my laughing, happy Monkey. He chased me and didn’t get frustrated! I hid from him and he kept looking and calling out “Money!” but not too loudly and not too upset. It was fun. Poor Duhdee just stood there surrounded by…stuff ((OK, FINE! I was buying some underwears at Kohls, happy?))…and watched the fun. He was relieved to get the OK from me to take Monkey to the toy section. He’s a good sport.
  • Yesterday morning, as we were walking in to school a teenaged girl stopped us and said “Did he used to go to the [Insert Old School’s Name]?” I said that he did and she smiled at him and said she remembered him. I got her name. I like having big kids to look out for my little kid. I wonder if she’s old enough to babysit…she looked old enough…hmmm…(Note to self**ask teacher to see if we can track her down**). When I relayed the story to his teacher her eyes got really big and she told us a story from last week…Monkey was in line with his class walking down the hall when he passed a woman who is a retired teacher from the [Insert Old School’s Name]. He looked at her, took a few more steps and then stopped. He turned around, went back to her and said “Hi!” and waved. Then he got back in line and continued. The retired teacher was shocked, she hadn’t recognized him until he said something to her 🙂 He is making so much progress!

Curses! Out of time again. See, we really SHOULD just follow him around with a video camera 😉