Under Armour and Making New Friends

One of the recommendations from the OT at our last visit to the Fragile X clinic was to consider Under Armour for Monkey. Since he benefits so much from deep pressure we thought it had a chance of being really good for him. Of course, if there is one thing we’ve learned, it’s that Monkey often doesn’t much care what we think so it was really a total cwap shoot but we decided to give it a try.

We found an Under Armour outlet in Kittery and stocked up. We bought short-sleeved shirts, shorts and one pair of pants. We thought the shorts had a better chance of success but we wanted to try the pants too.

Two weeks into the trial, one of his teachers commented how much better he was doing at circle time. Instead of needing constant reminders to stay seated he was able to stay on his own! Circle time has always been a challenge for him because of the need to stay still and the fact that it’s always language based activities…not his strength.

A month and a half month into the Under Armour experiment and Monkey was so relaxed during story time that he began laying down and even staying there for a few minutes once the other kids get up. I don’t think you can explain this huge change in such a short period of time by saying it was just him maturing.

So, what does this have to do with making new friends? The result of a more relaxed Monkey is that he’s better able to make social connections. He is more tolerant of the busy, busy boys so he’s spending more time with the boys rather than his previous preference for the girls and their quieter play. In spending more time with the boys, relationships are developing. He talks more about the boys at home and on the way to school. He goes out of his way to be sure that his friends have what they need in the classroom (gathering lunch bags or other items before they leave the classroom) and he even has requested a play date with a classmate.

This morning we saw evidence of how much this friendship is being reciprocated. We were running late ((How do ALL the alarms in the house fail on the same morning?!?)) so we met two of his friends in the hallway as they took the attendance sheet to the office. They greeted him with big smiles and he returned the greetings. Everyone had moved to “morning meeting” so we had to rush to get Monkey set up to join them. Monkey had a hard time with this change and was really struggling. When it came time to “check in” by moving his name tag onto the wall with all the other kids who were in class, he missed the velcro. The tag fluttered to the floor and Monkey ran into the coat closet. He was stressed out and we knew we had to stop with the verbal prompts.

Just then the boys returned from their errand and one of them took a look at Monkey, stressed out and hiding in the closet, and then he noticed Monkey’s name tag on the floor. He didn’t ask what was wrong. He didn’t seem concerned at all. He just decided to help. He picked up the tag and put it on the last open spot on the check-in board, smiled at Monkey and moved on giving Monkey the space he needed to join the class. Just then, from the circle, we heard the teacher ask if the class had any questions they’d like to ask about a classmate. One of the boys raised their hands and said he had a question about Monkey.

I turned to look at the group, prepared for the obvious questions about what was wrong with Monkey, why was he upset, why was he in the closet, etc. I was preparing myself mentally to step in and explain how changes in the routine were very hard for him and why, when the question popped out. It was from a little boy in the class who is fairly significantly affected by autism so the question was a little garbled but the teacher was able to get the question out of him. He wanted to know…what Monkey had done yesterday.

That’s it. He didn’t particularly care that Monkey was making a very small scene not 10 feet away. He just wanted to know how his weekend was. I’d tell you how much it means to me to know that these kids just accept Monkey, quirks and all, but I think you all already know.

FWIW, Monkey’s weekend was *great.* It was no big deal, we just went on a successful play date in a new house with all new kids and all new adults. It’s not like that was THE MOST AMAZING THING EVER or anything *SQUEE*

My job for the next hour.

We have a play date this afternoon! I know, traditionally, the play date is for the kids but this one is as much for the parents as it is for the kids. I’m trying to manage my expectations so I can manage my anxiety over this whole thing.

  • Today, I am hoping Monkey will walk into a new house without tears.
  • Today, I am hoping he can find some enjoyment in playing with some new friends.
  • Today, I am hoping my nervousness about how he will do won’t show.

So, my job for the next hour is to be calm, cool and collected. That’s realistic, right?

Quick, someone toss me some coping skills!

Happy Saturday!

This morning around 7 AM my little Monkey woke up and, of course, he came and woke us up too, he’s sweet and generous that way! After we made eye contact, and I think I probably used some sounds that resembled English, Monkey wandered off to his laptop to enjoy some early morning YouTube. I closed my eyes briefly because they were so, so heavy still.

A moment later Monkey came running back in and told me “Money, sweater?” and pointed at my “Walk for Fragile X Syndrome” hoodie that sweet Holly gifted me back in July ((And she did it because she is a kind and loving and generous woman, not at all because she still had boxes of 2010 shirts and hoodies left over, ahem ;-))). I sat up reluctantly because I just don’t wake up that fast, it’s hard to go from drooling to wide awake at…and then I glanced at my clock…HOLY SHIP! It was 9 AM!!!

Monkey had checked in with us at 7 and then amused himself for 2 hours on YouTube!

King of the House.

Normally, Fridays are a little rough. Monkey doesn’t sleep as well during the week and by Friday he is just d.o.n.e. with school. By Fridays, I feel the same. This morning, however, he was just full of it ((Me, not so much.)).

When the time came to put his socks and boots on, he and Duhdee sat on the couch. Duhdee handed him his socks then turned to put his own shoes on. Monkey ignored the socks and started to put his boots on his bare feet. Duhdee interrupted and told him to put his socks on…

“Monkey, can you put your socks on? ((Duhdee never learns! We do not ask him if he *can* do something, he will always say NO!))”

“No! Boots on!” As he struggles to get the boot over his foot.

“Monkey, you need socks. Put your socks on silly!”

“No. No.” Then Monkey picked up a sock and tossed it at Duhdee!

“Put your socks on!”

“No. No.” And this time Monkey adds a little head shake (and a mischievous grin) to the mix.

“What are you doing?? Put your socks on!” and Duhdee handed back the socks that Monkey had tossed in his lap again.

“No. No.” Now add giggles to the whole mix from above.

Then Monkey lifts his feet up and puts them into Duhdee’s lap so Duhdee can put the socks on for him.

“Excuse me, who do you think you are? King of the house?”

Monkey’s whole face lit up and he chirped “Yes!”

Duhdee put on one of the socks for Monkey and made him do the other. See, I’m not the ONLY sucker in this house.

It turns out, I’m a sponge too.

I’ve started a ton of blog posts lately and they’ve all been relegated to the draft bin. I may finish them some day but I hope I never do. They’re depressing, maudlin pieces of garbage with no redeeming qualities whatsoever. They’re self-indulgent to the extreme. I feel so guilty and it’s all my fault and WAHHHHHHH! Someone slap me would you?

I really hate when I get into these moods. I gradually lose my ability to let negativity bounce off me and I have realized recently that, somewhere along the line, I started sucking it up and absorbing it and making it mine. And? I DO NOT WANT.

There are a couple ways to handle this, my normal withdrawal and hunker down until the mood passes or I can fight back. People who are having a bad day don’t want to hear that they’re dragging the hive mind down, they’ll just think I’m being an insenstive birch ((And, they’d be right!)). So, what to do?

If you haven’t made the connection yet, I’m one of the co-founders of that LINKS group over there on the left, the Fragile X LINKS Group of Eastern Massachusetts. What I’m going to do is plan a series of events to get my Fragile X peeps together…our first is a night out for parents and it is on March 5th. That is a full month away. Take a few hours off, you deserve them. Find a neighbor or friend or family member to sit with the kid(s).

If you’re in the area and have not already signed up for the mailing list, you should because I’ve got big plans for that group. The draft blog posts over there are much more fun than the ones here!

I like my new nightly greeting.

For a very long time, Monkey would greet me at the end of a long hard day with tears. He had held himself together all day at school and all afternoon at home and my appearance was simply the permission he needed to fall apart. Money was home! Everyone was safe! Let’s have a good long cry!

This pattern was really hard to break because, over time, I was conditioned to expect tears ((And sometimes puke, joy.)) when I walked through the front door which made me a little tense. Monkey fed off my stress and a vicious cycle was born.

We tried a variety of methods but what seemed to work best is that, well, Monkey decided he preferred to greet me in another way. Sorry that I don’t have any stellar parenting tips to help you out but, then again, I never do so…no harm done, I guess.

SO, this new greeting? I love it and it shows that my Monkey pays very close attention to his Money. When I open the front door now, before I make my way up the stairs, I’ll hear Monkey yell out, “Money’s home! Hi Money!” Sometimes he’ll run to see me and sometimes he’ll wait for me to come to him but as soon as we make eye contact he’ll whisper, sweetly, “Choc-o-late?”

Yes, please! That is the exact best way to welcome me home.

He is *really* anti-birthday.

Last year he refused outright to pick out any birthday party gear. If you want to look ridiculous, and really, who doesn’t, you should try chasing your five year old around a party store demanding that they pick a theme right. now. THEN threaten them with, “We are not leaving until you pick birthday plates, dammit!” OK, I didn’t really…well, I did *blush* but I did NOT say “dammit!” ((The answer to that question that just flitted through your brain is “Lots.” There is LOTS wrong with me.))

I thought that this year I might get us back on track by slowly breaking him down introducing the subject to him. Since his birthday is in May I thought January would be soon enough but I think he just made it clear that I should have started in January 2009, which was the last time we discussed it and he didn’t immediately shoot down the very idea of a party.

I just very casually showed him some plates I thought he might enjoy (here, here and here) and a set I want (here) and he immediately responded with “No, stay here?” and ran out of the room. I haven’t even mentioned the “P” word yet! This should be fun.

Come ON! Who says no to plates like this???

A?

Monkey has been asking to “watch TV” today. He will sometimes ask to watch something but it’s pretty rare and, when he does, he requests the show by the character which makes finding what he wants a lot easier. Today, however, he’s only been saying “A” when we ask what he wants to watch on TV. Not terribly helpful.

Duhdee finally turned on the TV and brought up the list of recorded shows so Monkey could point to what it was he wanted to watch. As soon as the list popped up Duhdee started to scroll down through the list but Monkey said “No! No! Up!” Duhdee scrolled back up and Monkey found just what it was he wanted to watch…Ask This Old House ((Monkey and Duhdee like to watch a number of home repair shows, Duhdee is always looking to learn or find new ideas and Monkey likes the tools. Win-win!)). “A” it is then!

Another @%#^ing snowday.

I’m not just feeling bitter over the fact that we still have a MOUNTAIN in our front yard from the last two storms, though that doesn’t help my mental status. I need to see some green grass soon, dammit! Anyway.

The real issue here is that between winter break and the 3 snowdays and MLK day and my trip we have not been able to get back into our school routine and it is wearing Monkey down. He is having a really hard time transitioning to school again and it had been going so well all fall. Also, he fell asleep for an hour and a half during the schoolday this week.

We saw the developmental pediatrician recently for 3 month meds visit and based on our reports he said it sounds like Monkey’s anxiety is really ramping up right now. He said this sort of thing tends to happen in cycles but he agrees with us that it’s time to treat it…now we just have to figure out how to treat it.