I mentioned in my last post that I had a zombie post ((It ate my braaaaaaaainnns!)) lined up but two things happened ((I am numbering these just for Kathleen!))
- My self-righteous anger died after I spewed the venom into mah blawg; and
- I forgot the password I used to password protect it ((I was scared I would hit Publish on that one by mistake. It required very precise timing for publication!)).
So, no zombie posts! Which is good…it was très horrible.
The problem is that it appears the zombie post ate my temporal lobes first, I think “Oh, I should blog that!” and then I sit down and think “Uh, what was I doing?” *hrumph*
I’m considering “outing” myself here. I’d say most everyone knows who I am, it’s not that hard to figure out 😉 We have simply outgrown the Umma/Duhdee thing now. Obviously, Monkey is Monkey…100% but we are no longer Umma and Duhdee anywhere but here. I’m “Money” and sometimes, under rare circumstances, “Mommy” and Duhdee is “Honey” and if he doesn’t respond fast enough “Eric!!”
I guess I’m ready for a change but I don’t know which way to go. ONE thing that is holding me back, besides the general lack of brains, is this question that has always been swirling around in my brain but now with all the drug trials going on is sort of poking a little more forcefully at me…
What happens *if* we find a cure? What if one of the medications off sets his symptoms enough so that he isn’t noticeably affected by fragile x? What if a future employer Googles him and discovers…hey, this amazing candidate I’m considering hiring actually has a genetic disorder and was, once upon a time, considered intellectually disabled? Would they still hire him? Would people look at him differently?
I really wish the zombie post had consumed the “What if” portion first…
I’ve thought along those lines as well. Will it make a difference down the road if a cure does come? Will L catch up to her peers, or will it just be too hard? I could rack my brain all day, but it usually just gives me a headache.
I vacillate between support, mockery, and ‘come to the dark side with me.’
1. It is scary. I know you can do it though. Matter of fact, I’m pretty sure you will. 🙂 2. Ummm yeah, it’s not TOO tough to figure it out, everyone knows who you are, along the same lines how we all knew Ricky Martin was gay. 3. It’s not so bad being outed. Matter of fact, it now explains all the stares. I thought it was just because I was hot, but now with the celebrity too, oy.
If there’s a cure? Movie deal. Start thinking ‘Who will play Umma in the award winning HBO miniseries?’
Who? That’s easy…Angelina, of course! I can’t believe you even had to ask!!
Wow. That is what’s holding you back? That had never occurred to me.
I guess if it came down to that…. couldn’t we just delete our blogs? You know, 20 years from now, if this becomes an issue?
It didn’t even occur to me, when I started my blog, to be anonymous. I feel kind of dumb for not thinking this online life through. But we are out there now, it is what it is.
Oh, and dang…. I was really looking forward to the zombie post. 😉
Once it’s out there, it’s out there…nothing ever really disappears on the internet 😉
I have been known to over-think things and worry unnecessarily. For instance, when I mentioned this to Duhdee earlier to see if he would mind, he very kindly refrained from rolling his eyes at me. Hey, I didn’t earn the nickname “Worrywart” as a child for nothing.
Also, initially the reluctance was having the school being able to find the blog…I haven’t always been complementary when talking about them, of course, they earned that, soooo….
We still don’t show up when searching by our city and fragile x thanks to Seaside 🙂
Can I go back and un-out myself? I never knew that was an option.
Gracious girl, get out here and popcorn dance!
I have only been reading your blog for a few months. I think your thoughts , fears and joy are shared by most of us. As for worries about how all if this will affect our kids later if there us a cure no one can tell. But think of how many kids have problems. Everyone takes meds for one reason or another.(or they need to lol)
30 years ago it was taboo to have a tatoo in a business setting. Now there are CEO ‘s with full sleeves. The world changes people adapt. Maybe they will look them up on Google and say ” Thank God they found a cure, what a great asset they will be ”
Oh and if you and Kathleen Quinn get a movie deal I want free passes.:)