Yesterday, I put my fragile X carrier anxiety on full display for you ((I hope it was more fun for you than it was for me!)) and once again I’m reminded why my life has been 100,000,000,000 times better since I’ve become involved in the fragile X community. If you didn’t read the comments, you should go back and do that.
To sum up…this was about my fear, not Caleb’s. I should prepare him in advance with a social story (a handy copy of one to modify was e-mailed to me even), I should invite some of his friends, I should not let this hold me back, I have to keep trying, someone volunteered to go with us and I was reminded that even a small victory is still a victory.
Oh, also, I was provided with my newest favorite mantra…
“Turn your fear into fierce! <3“
How awesome is that?? Thanks Angie!
This is exactly why so many of us refer to the fragile X community as “the coolest club no one wants to join” or comments that if it had to be something, that we are lucky it was fragile X. I cannot think of any community that is as close and as supportive as this one.
I love you all! Thank you, thank you, thank you!
We’re totally going for it. I do have to say I’m pretty shocked though that no one suggested alcohol or Xanax for me beforehand 😉
We don’t need to suggest the OBVIOUS! Loved Angie Barrett Grantman’s quote!
I was thinking…ALL of that was pretty obvious (except to me at that moment) and then I realized you were talking about the Xanax and alcohol, lol.
Loved Angie Barrett Grantman’s comment too!
‘Self medicating’ is a given 100% of the time.
Hotel California baby. <3
I cannot wait to hear about how wonderful a time he had. 🙂
Hotel California on the really crappy days 😉
Theodore G. Coutilish liked this on Facebook.
Robyn Sheldon liked this on Facebook.
Stacy Scheppe Madden liked this on Facebook.
Biliana Kaneva liked this on Facebook.
Cortney Abouelseoud liked this on Facebook.
Kathleen Quinn liked this on Facebook.
Stacie Bubb Hanna liked this on Facebook.
Somethings, Melissa, are a given.
Christie Clark Friedman liked this on Facebook.
<3 <3 <3 it....C is so lucky to have you and E :)
You’re amazing! I love the new mantra too!
Tammy Dinger liked this on Facebook.
Leonor Cajaraville liked this on Facebook.
Chelsea Owens liked this on Facebook.
Kristin Furubotten Jones liked this on Facebook.
Bhavna Shah liked this on Facebook.
Cindi Rogers liked this on Facebook.
I’m so glad, because I was going to tell you that his wanting to go is half of the battle! My guess is if you social story it, perhaps even give him some examples ahead of time of how loud it will be, he’ll do just fine. Our kiddos when motivated are utterly amazing and will always surprise us!
Oh my goodness! I leave for a couple of hours and come home feeling all famous. LOL I am so happy C gets to go to the circus! You are a good momma, Money!!!! <3 <3 <3
PS I registered David and Jonathan for a Surfers Healing surf camp and David heard me talking about it and remembers clearly what it was like when he did it about 8 years ago and he said “I not surfin! The waters splashin my face an I’m not goin!” Lol I said, “ya but remember how much fun it was when you got to stand on the board and ride the waves?!” He said, “ya but I’m not goin! No!” I said, laughing, “sure you are! And so is Jonathan!” The fact that Jonathan’s doing it will motivate him plenty. Lol. He puts up a fight at first and then he remembers he actually likes what were doing and he does fine.
Rebecca Wellbrock liked this on Facebook.
Angie Barrett Grantman liked this on Facebook.
Cynthia Watson-Kelly liked this on Facebook.
Sandra Santos liked this on Facebook.
RT @basicallyfx: Once again, I am reminded of what it means to have a community.: http://t.co/PmI68Edis9 #fragileX
RT @basicallyfx: Once again, I am reminded of what it means to have a community.: http://t.co/KnxPOaA7K7 #fragileX