Last night was our monthly FXMNO (Fragile X Moms’ Night Out) event. When we started these a few years ago there was just a small handful of us that would get together whenever we could coordinate schedules. We quickly realized that there was something so healing about sitting down over a glass of wine (or ginger ale) with people who understood what our lives had become so we picked a regular date and we stick to it. We stick to it so we can plan our other responsibilities around it, it’s that important to us.
Last night, after we had been sitting, talking and laughing for nearly 2 hours, you approached us.
“I’m sorry, I don’t usually do this…” you began.
We all immediately quieted, expecting to be chastised for being too loud…for disrupting your dinner. We were all in high spirits.
“I just wanted to say, it’s been a very long time since I have seen a group of people enjoy each other so much.” You were curious about what brought us all together. I explained, briefly, that we all have children with fragile X syndrome and that this is our monthly gathering.
You apologized and worried that you shouldn’t have interrupted. We thanked you for coming over and invited you to join us. I might have had a lump in my throat.
You left first and waved goodnight. When we left, we all stood grouped outside the door and enjoyed a brief modeling demonstration. The well lit walkway made a great runway, don’t you think? Then we walked to our vehicles and slowly the group split up for another month.
Since last night, that encounter has been playing in my head over and over again. I am glad we thanked you but I don’t feel like it was enough…what I wish I had said was,
“Thank you for being brave enough to approach a table full of strangers. Thank you for not shushing us but for encouraging us. Thank you for interrupting our evening, ever so briefly, to let us see how very special this group of friends we have is. Thank you for making us stop and look at each other and realize that no matter how much fragile X has taken…it has given back too. It has given us friends and laughter and love. It has given us connections with people we otherwise wouldn’t have met. It has given us a family, beyond the ones we were born to, that we can share with and count on. Thank you for blessing us…and reminding us that we are blessed in so many ways. Thank you for making a wonderful night a little bit brighter.”
This morning when I logged in to Facebook I saw this had been posted by my BFF…
It reminded me of you. You were kinder than necessary to a group of total strangers, I hope you know you that your kindness won’t be soon forgotten. Thank you.
Awesome on so many levels. ♡
You totally made me cry! She was SO kind and I think it was nice for someone to point out how obviously fabulous we are all together. Love you all so much and I am so thankful to have you all in my life! Xoxo
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So sweet!
What a great story!
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Great group of ladies to have each other in their lives and YES much thanks to the Lady at the Papa Razzi Framingham for acknowledging herself to your table
I have been thinking about that too – and about how it’s not just FX, but fun and friends and laughter. It’s what heals us. xoxo❤️❤️❤️
I betcha she wished she had a child with FX so she could be part of the group. Someday I will make it again!
nicely said, thanks
Well this made me tear up (nothing new when it comes to your blogs) I love the kindness of strangers but I love that you all stopped and welcomed her too. Although my son doesn’t have FX he is on the spectrum and I have never felt so welcome to a place, a group, as I have to the FX community. You all inspire me daily! Thank you for that! XOXOXOXOXOXO
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