End of the year.

Yesterday was Monkey’s end of the year celebration even though he’s not actually finished school for the year.  It marked the end of the year for the peer models, the kids on IEPs will reconvene for summer session in July.

Duhdee and I managed to miss the kids’ performance.  We tried to squeeze too much in too little time and then traffic stopped us in our tracks.  I did not cry but I wanted to.  One of the other parents taped it and is going to send us a copy.  *sigh* 

Duhdee pointed out that Monkey probably did so well, per his teacher and all the assistants and a few parents,  because we weren’t there.  If he’d seen us he would have done what he always does which is to demand to “go home!  Mommy change!”  I still hate that we missed it but what’s done is done.  On the bright side we did get gorgeous sunflower bouquets for the teacher, the assistants and the therapists.  End of the year thank-you’s get expensive when you have teams of people!

The teacher had posted all of the pictures that she’d taken of the kids over the course of the last year on the walls and invited parents to take whatever they wanted.  After a few minutes Duhdee and I realized that if we took all the photos with Monkey in them we’d be taking 3/4’s of the photos, lol, and most of them were of him alone.  Monkey loves, loves, loves his teacher and it looks like the feeling may just be mutual based on the photographic evidence!

Jokingly, we asked her if she’d come with Monkey to kindergarten and she told us that she had, in fact, considered applying for the job but decided her passion is for pre-school.  Darn it!  We are all going to miss her tremendously.

Happy Father’s Day!

Duhdee is an amazing dad.  He is an extremely calm and giving man.  He is our everything.  He can wind the child up with wild games of swinging Monkey around by his ankles, he can soothe the wounded beast Monkey can turn into at the drop of a hat, he can stop Monkey in his misbehaving tracks with a word.  He does all the same for me…except for swinging me around by my ankles but he has been known to throw me over his shoulder, much to Monkey’s delight.

He is, at his core, a selfless person.  He lives for making others happy.  He lives for taking care of people.  I know for sure that I’ve never done anything to deserve him.  I’m convinced we found each other for the amazing little boy that we both dote on.  I thank my lucky Monkey that we both have him.

Name the story.

Monkey just “read” me a story.  Can you guess?  It’s pretty easy, lol.

Capillar hungy.

Cake! Pizza! ((No, pizza is not eaten in the book, it’s Monkey’s favorite food and he insists that the pie is pizza.  Wishful thinking.))

Big capillar! Big!

Cocoon, sleep *fake snore sound*

A buffly!

You OK?

The other night Monkey and Duhdee were in the living room playing.  Duhdee told Monkey to go give me a kiss.  Monkey came running to find me.  He caught me just as I entered the hall from the bathroom and he held his arms up for a hug.

I bent over to hug him, he hugged my neck tightly and wrapped his legs around my waist.  As I stood, lifting him up, I bumped my back on the door handle.

As soon as the “Owww!” was out of my mouth Monkey asked, “You OK?”  and he patted my back gently to comfort me.  Then I fell into a diabetic coma from the sweetness. 

Once recovered I told Duhdee, for probably the third time that day, “We got the best one!”

I should have known better.

This morning a copy of Monkey’s ABLLS results were in his cubby at school.  I definitely agree with our advocate that it provides great visual evidence of Monkey’s skills.  I also agree with his teacher that it shows his strengths and weaknesses very effectively. 

So what’s the problem?  We were just given the score sheet (not the technical term, I’m sure) which is what we had asked for.  So, again, what’s the problem?  The score sheet doesn’t tell us what questions were asked for each skill so while I know what categories the results are for I don’t have specifics.

I should have known better.  When have I ever been satisfied with anything less than alllll the information I can get my hands on?  The answer to that, should you be new here, is never.  Duhdee’s going to have to ask for the full test results.  All ninety-six pages.  At least I know what I’ll be reading for the rest of the week…

A different world.

Sometimes when we talk about Monkey with co-workers or other parents it’s really clear that we reside in a totally different world.  Sometimes it makes me a little blue to be honest. 

On Thursday, I was quickly wrapping up a project meeting so I could leave for Monkey’s IEP meeting when a co-worker asked if it was like a “PTA meeting.”

Heh, no.  So, while I stuffed papers into my bag and thanked people for coming, I explained what an IEP is and she said…

“Oh!  How cute!”

I stopped in my tracks, turned to look at her and…laughed.  Several people stared at her like she had two heads but how can you not laugh at that? 

My response was, “Not really. It’s kind of a pain in the ass, actually.”

The obligatory IEP round-up.

So, the IEP meeting we expected to be “meh” was anything but.   The biggest piece of news came about 2/3’s of the way through the meeting when the AT evaluator arrived with The Device.  ((FYI, it’s the SpringboardLite, he will get the VantageLite in July.))  That’s huge but the other parts of the meeting were even better and I am saying that sincerely not sarcastically, as I am wont to do.

We did not spend hours going over the reports that they had written which is typical of these meetings.  I’ve never really understood why they would write a report, present it to us 48 hours in advance and then proceed to read it to us at the meeting.  I know they have to do the first two but it seems like such a waste of time reading them aloud at the meeting.  It is primarily why our IEP meetings tend to stretch unnecessarily into 3 hour marathons.  So we skipped it.  They assumed we’d done our homework and we had.  We’re suck-ups that way.

Each of the evaluators started by asking us if we had any questions about what they’d provided.  We didn’t really have any questions.  The reports were all very well written which shouldn’t be noteworthy, given the fact that they’re written by teachers, but it is.  I’ve been shocked by some of the reports and IEPs we’ve seen in the past.  Hello, spell check anyone?  (Cheeses priced!  My thoughts always run this way…as do my conversations…another reason that our IEP meetings tend to stretch unnecessarily into 3 hour marathons, ahem.)

Back to the subject at hand.  The reports were well written.  They started with the assumption that we’d read them and we just jumped right to the question and answer sessions.  They each made sure to hit the highlights of the reports.  We asked his teacher to take some additional notes and write up yet another letter for our developmental pediatrician.  I think we’re going to try to skip to the Focalin sooner rather than later since Monkey’s emotional fragility has not eased.  In fact, he was so emotional last Friday that the teacher worried about him all night.  She called us on Saturday to check on him.  I love her.  He was fine.

I mentioned that the reports were a bit depressing, the numbers are not what any parent wants to hear.  1 percentile ranking in skills is heartbreaking no matter how many times you’ve seen it.  What was amazing to us though was the reason for this.  Want to know why the numbers were low?  Because for the first time ever, in his life, he was able to tolerate standardized tests.  He sat through entire tests and remained focused.  He didn’t melt down.  He sat down for long periods of time and responded to direct questions.  Totally unprecedented.  They didn’t even plan on using standardized tests when we talked in April because no one thought he’d ever be able to handle it.  And he DID IT!  I am so amazed and proud of him.

They also used observations of him in the classroom and knowledge they possess because they have been working with him directly for 2 years now and included that information in the reports as well to give a more accurate picture of his abilities since the standardized tests did not.  Both the ST and the OT commented on the fact that there were lots of times when they couldn’t give him credit for an answer because he didn’t quite do it correctly even though he understood what they were asking.  For example, there was a picture of a kitchen with lots of forks hidden in it.  He was told to circle the forks.  His fine motor skills are enough of a struggle for him that drawing the circles was taking up way too much of his focus so the OT had him POINT at the forks and she marked them.  Twice she had to mark him as giving incorrect answers because he pointed to a knife once and a spoon once but she didn’t want to mark it down because even though he’d pointed at it, he’d done so while shaking his head no.  He told her they weren’t forks but because he touched them she had to record them as incorrect responses.  See why standardized tests suck?

The teacher had also administered the ABLLS, we’ll be getting a copy of the results soon…she forgot to bring them.  She was AMAZED by how well he did.  He is showing huge gains in his skills in all areas and there are a lot of “emerging” skills that we’ll work toward mastering.   She also noted that he’s made huge gains in his pre-academic areas.   His pre-literacy and math skills have made big jumps in the last two months so she had to re-write some of his goals. TWO MONTHS!

So, the percentile rankings…meh…we knew that they wouldn’t give us a good picture of his abilities but the very fact that he could sit and take them is amazing.  He’s showing huge gains everywhere.  He’s even started talking in SENTENCES this week.   I wish all our IEP meetings went like this!

In a stunning turn of events…

Monkey has a freaking assistive tech/voice output device.  Holy crappen!

We have been discussing this issue since…hmmm, let’s see…June, 2008!  TWO YEARS!!!  Several times we thought we were close only for it to continue to drag on but at today’s meeting the Assistive Tech trainer/evaluator had  a “loaner” device for him to use, until his device arrives in July, IN HER HAND.  An actual, honest to goodness device…I was so shocked I didn’t even look at what it is, lol.  She did say that it’s the older model of the VantageLite which is what he’ll be getting.

AND, AND, AND…my insurance company is paying for it.  Stunning.  Simply stunning.

It’s time for another IEP meeting!

I feel like this is all I do!  Gah. 

This is our 3 year re-evaluation.  We have reports, lots of reports.  I read through all of them yesterday.  It’s a bit depressing, as usual, to read about the delays.  Obviously we’re aware he’s delayed but breaking it down to numbers is just so harsh.   In his weakest areas (expressive communication and fine motor) he’s operating at about the 2-3 year old range.  In his stronger areas (receptive communication and daily living skills) he’s at the 4-5 year range with some areas on target.   His other skills are scattered in the middle. 

So what does this mean?  Not much, actually.  We already knew he would still be eligible for special education.  We wrote an IEP and updated his goals less than 2 months ago so those shouldn’t change much.  We know what classroom he will be in.  The only things we don’t know now are 1.  who his teacher is and 2. at which school the classroom will be located. 

Neither of those unknowns will be resolved tomorrow.  The district is still interviewing teachers.  They’re planning to hire someone with dual certification so he or she can teach both the special education and mainstream portions.  The space we all thought would be used for the classroom is unavailable.  The space is currently occupied by a substantially separate classroom that the district wanted to move.  Parents objected to the proposals, for some very good reasons, so the class will not be moved until 2011 at the earliest.  

We’re a little disappointed because the school was one of our proximity schools and it has integrated grades 3-8 classrooms already established, no other school in the district is set up in this manner.  We’ll just have to see what happens.  If the parents’ concerns and the district’s concerns are reconciled it will make little difference ultimately but if things continue as they are Monkey will have to go to at least 2 and possibly 3 or 4 different schools between kindergarten and 8th grade while a typical student goes to the same school K-8.  We don’t want that.  We want him to be able to build those long term friendships with peers and teachers so that when he does go to the district high school he has those friendships to ease his transition.

But, none of these things can be addressed tomorrow, clearly.  So, we go to the meeting and hopefully get it done quickly.  I’m not terribly concerned with getting a perfect IEP this time.  Once we have a school, a teacher, a classroom and a classroom schedule then we’re going to have to fine tune it anyway.  It seems so anti-climactic.  The 3 year re-eval is supposed to be such a big deal and it’s pretty much turned out to be…meh

Not that I’m complaining 🙂